Links to Websites and Resources

Adhesions Related Disorder

Australian Adhesions Support www.bombobeach.com

International Adhesions Society www.adhesions.org 

ALS

Articles on Illness

But They LOOK So Good! - The Paradox of Feeling Bad, but Looking Good. Excerpt of Part 1 of the booklet, But You LOOK Good! www.myida.org/theylook.htm

CFIDS/Fibromyalgia Self Help www.cfidsselfhelp.org/archive_articles.htm 

Chronic Syndrome Support Assoc www.cssa-inc.org/Articles.htm 

Coping with Invisible MS - Article from the Alliance Exchange © Avonex Alliance, written about Sherri and invisible disabilities. www.myida.org/coping.htm 

Disabled? You Don't LOOK Disabled! - Unmasking Society's Depiction of People with Disabilities. www.myida.org/disabled.htm 

Fibrohugs Fibromyalgia Articles www.fibrohugs.com/html/articles.html  

The Fibromyalgia Community Newsletter (back issues) www.fmscommunity.org/back_issues.htm 

For Friends and Family: How to Help - Article from the MSFocus Magazine © the MS Foundation, excerpted from But You LOOK Good! www.myida.org/help.htm 

I Never Know What to Say or Do! Learning How to Encourage and Help Someone with a Chronic Condition. Excerpt of Parts 2 and 3 of the booklet, "But You LOOK Good" www.myida.org/sayordo.htm 

Knowledge is Power! Educate the Masses!! - By S.W. Hussey and Sherri Connell. www.myida.org/knowledge.htm 

Looks Can Be Deceiving! - Understanding the Debilitating Pain and Limitations on the Inside, Despite What You Can See on the Outside. www.myida.org/looks.htm 

Multiple What? - Untangling the Perplexities of Multiple Sclerosis. An explanation to dispel assumptions that all with MS have the same symptoms and severity of symptoms. www.myida.org/ms.htm 

National Fibromyalgia Association Online Newsletter http://fmaware.org/newsletter/archive.htm 

National Fibromyalgia Association Articles http://fmaware.org/patients.htm 

Persons with Disabilities Should Be Treated with Respect

Put Yourself in Our Shoes by www.deannandlenny.com/feeling.htm

That STINKS! Are Perfumes and Fragrances Making You Sick? www.MyIDA.org/stinks.htm

Why Don't They Just Take Something? - Living in the Gap. Loved ones often assume that if their friend or family member is still sick, they must be failing to do what their doctor is telling them to do. This article is a window into why this is not always the case!! www.myida.org/take.htm

Arachnoiditis

COFWA Support  www.cofwa.org

Arnold Chiari Malformation

All About Arnold Chiari Malformation http://aaacm.com

World Arnold Chiari Malformation www.wacma.com

Arthritis

American College of Rheumatology  www.rheumatology.org

Arthrite Montreal Arthritis www.arthritismontreal.ca

Arthritis Foundation  www.arthritis.org

Arthritis Trust of America www.arthritistrust.org

Cure Arthritis Now www.curearthritisnow.org

Dr. Theo Online  (home site of author of "The Arthritis Cure") www.drtheo.com

Int'l Stills Disease Foundation  www.stillsdisease.org  

John Hopkins  www.mri.jhu.edu/~dbluemke/

Avascular_necrosis.html 

Osteonecrosis Support Group International   http://members.aol.com/MarieS1520/2bkn.html

Totally Hip  www.totallyhip.org

Books

VISIT IDA'S eSTORE FOR DISCOUNTED BOOKS AND MORE!  IDA's eStore

Bowel and Digestive Disorders

Cyclic Vomiting Syndrome Association www.cvsaonline.org

DigestionInfo.com  www.digestioninfo.com

Help for IBS  www.helpforibs.com

IBD-IBS Bookstore  www.wellnessbooks.com/ibd/

IBS FAQ  www.angelfire.com/il/ibshelp

IBS Resource Ctr  www.healingwell.com/ibs

The IBS Page  www.panix.com/~ibs

IBS Tales www.ibstales.com

IBS Village www.IBSVillage.com 

Mind Body Digestive Center www.mindbodydigestive.com 

Brain Injury

The Brain Matters www.thebrainmatters.org

Dr. Diane's Health Helper  www.drdiane.com

International Brain Injury Assoc.  www.internationalbrain.org

Transitional Learning Center http://TLCRehab.org

Cancer

Caregivers/Family

A Sibling's Site www.asiblingssite.com 

The Caregiver Partnership www.caregiverpartnership.com

Empowering Caregivers  www.care-givers.com 

Family Caregiver: Getting the Support You Deserve www.familycaregiversonline.com 

Family Caregiver Alliance  www.caregiver.org

Family Onwards (for parents and grandparents of children with disabilities) www.familyonwards.com 

Chronic Fatigue

American Assoc. of CFS  www.aacfs.org

Chronic Fatigue and Disability www.disabilitydoc.com/chronic-fatigue-syndrome-and-d/ 

Dr. Cathcart  (features info. on CFS, Chem. Sensitivity, Allergies, Natural therapies)  www.mall-net.com/cathcart

From Fatigued to Fantastic www.endfatigue.com

Mining Co: CFS  http://chronicfatigue.miningco.com

National CFIDS Foundation  http://ncf-net.org

Research Publications on Mycoplasmas www.cfsresearch.org/mycoplasma

Researchers Tie Gene Cluster to Chronic Fatigue www.npr.org/templates/story/story.php?storyId=5354895

Chronic Illness

Art of Getting Well (self-care information by David Spero, R.N.) www.art-of-getting-well.com/index.html 

The Chronic Illness Network www.chronicillnessnetwork.com

Chronic Syndrome Support Assn., Inc. (CSSA)  www.cssa-inc.org

Couples Facing Illness by Dr. William July www.couplesfacingillness.com/default.htm

Dr. Mirkin.com  www.drmirkin.com

The Edelson Center  (features extensive info. on treatments for chronic illnesses)  www.ephca.com/uvbi.htm

Everyday Warriors www.everydaywarriors.com

Invisible Disabilities Association of Canada www.nsnet.org/idacan 

National Chronic Care Consortium www.nccconline.org 

Pink Ribbon- Breast Cancer Resource Center www.yellowribbon.org

Red Ribbon- HIV and AIDS www.redribbon.com/home.htm 

The Road Back Foundation (Rheumatic Treatment and Research) www.roadback.org 

Who Cares? (Fred Friendly on Chronic Care Issues) www.pbs.org/fredfriendly/whocares

Chronic Pain

The American Academy of Pain Management www.aapainmanage.org 

The American Pain Foundation www.painfoundation.org 

The Centeno-Schultz Clinic www.centenoschultzclinic.com

Central Pain Syndrome Alliance www.centralpain.org 

Chronic Pain Clearing House www.myspirit2.homestead.com

Chronic Pain Clearing House Books www.myspirit2.homestead.com/payment.html 

For Those in Pain, Inc www.forthoseinpain.org 

Intractable Pain Law www.anapsid.org/cnd/pain/calpainlaws.html  

North American Chronic Pain Society www.nacps.us  

Pain Aid (Conference Room, Discussions, Expert Help) http://painaid.painfoundation.org 

Pain Concepts (Provider List) http://painconcepts.com/patient/3localprovider.htm 

Pain.com www.pain.com 

Painlog.com www.painlog.com 

Community Services

Congenital Heart Disease

Congenital Heart Disease Info and Res  www.achd@tchin.org

Crohn's/ Colitis

Crohn's Disease Colitis Source Site http://www.associatesystems.com/crohns-colitis.htm 

Crohn's Disease Resource Center  www.healingwell.com/ibd/

PatientCommunity.com (Crohn's and Colitis) www.patientcommunity.com 

Cystic Fibrosis

Cystic Fibrosis Foundation  www.cff.org/

Facts About CF  www.cff.org

Diabetes

American Diabetes Assoc  www.diabetes.org

children with DIABETES www.childrenwithdiabetes.com

Diabetes Resource Center  www.healingwell.com/diabetes

NetHealth  www.diabetes.com

Directories and Links Pages

AllRefer.com http://heath.allrefer.com/

disABILITIES Info. & Resources  www.eskimo.com/~jlubin/disabled.html         

Disabilities Resources Page  www2.rpa.net/~lrandall/index.html

HealingWell.com  www.healingwell.com

Healthfund (The)  www.thehealthfund.org/related.html

HealthLink USA  www.healthlinkusa.com

Healthopedia.com www.healthopedia.com

MEDICIMO.com www.medicimo.com 

Mining Co. Health  http://home.about.com/health

Disability Links

THE DISABILITY BENEFIT INFORMATION LINKS PAGE! Click Here

THE DISABILITY ISSUES AND WEBSITES LINKS PAGE! Click Here

THE DISABILITY PRODUCTS AND SERVICES LINKS PAGE! Click Here

Dysautonomia

Ear Disorders

American Hyperacusis www.americanhyperacusis.com

Meniere's Disease Information and Forums www.menieresforum.com 

Menieres.org www.menieres.org

Utah Tinnitus & Hyperacusis Center www.utahtinnitus.com 

Ehlers Danlos

Canadian Ehlers Danlos Assoc. www.ceda.ca

EDS Network C.A.R.E.S. Inc www.ehlersdanlosnetwork.org 

EDS Today www.edstoday.org

Ehlers Danlos National Foundation www.ednf.org

Ehlers Danlos Organization www.ehlers-danlos.org

Encephalitis

Encephalitis Global (West Nile Virus) http://groups.msn.com/EncephalitisGlobal

Endometriosis

Endometriosis  www.obgyn.net/endo/endo.htm

Endometriosis Association www.endometriosisassn.org

Endometriosis Center  www.cdc.net/~wolfekat/endo.htm

Endometriosis Research Center www.endocenter.org 

Environmental Illness

Visit The Cleaner Indoor Air Campaign Click Here

Sponsored By The Invisible Disabilities Advocate

Fibromyalgia

The FMSCommunity www.fmscommunity.org 

FMS/CFIDS Sufferers Unite Million Letter Campaign May 2005 www.fms-help.com/letter.htm

From Fatigued to Fantastic www.endfatigue.com

FibroFighters.com www.fibrofighters.com

FibroHugs  www.fibrohugs.com

Fibromyalgia Aches and Pains as a "Symptom" of Hypothyroidism http://thyroid.about.com/library/weekly/bldrlowe.htm 

Fibromyalgia Treatment Center www.fibromyalgiatreatment.com

Managing Fibromyalgia www.mwilliamson.com  

Mining Co: FM  http://chronicfatigue.miningco.com/msub11.htm

National Fibromyalgia Partnership www.fmpartnership.org 

National Fibromyalgia Awareness Campaign http://FMaware.org 

Grief and Loss

Ambiguous Loss (Pauline Boss, Ph.D) www.MyIDA.org/favorites.htm

American Academy of Bereavement (Dr. Jackson Rainer) www.bereavementacademy.org

Grief Resource Center www.centering.org 

Handicapped Parking

Don't Judge by Appearances  Article

Hemochromatosis

American Hemochromatosis Society  www.americanhs.org

CDC: Preventing  www.cdc.gov/genetics/

publications/h_hemo.html

Hepatitis

Frontline Hepatitis Awareness http://frontline-hepatitis-awareness.com

Hep C Compensation www.hepcompensation.com

H.E.A.L.S. of North GA www.healsofnga.org

Hepatitismag.com www.hepatitismag.com 

HepNet  www.hepnet.com/webs.html

Sapient Health Network  www.shn.net/hepatitis_c_1.html

House of Representatives

Write Your Representative  www.house.gov/writerep

Insurance Issues

California Consumer Health Care Council  www.cchcc.org

HMO Hardball www.hmohardball.com 

Interstitial Cystitis

Interstitial Cystitis Assoc www.ichelp.org 

Interstitial Cystitis Network  www.ic-network.com

Interstitial Cystitis Network  www.pelvicpainnet.org

IC Support Group (300+ members) http://groups.yahoo.com/interstitialcystitischronicpain 

Kidney Disease

Lynchberg Nephrology www.lynchburgnephrology.com 

Nightly Dialysis' "simple but revolutionary emphasis focuses on improving the quality of the patient's life, rather than merely prolonging the patient's existence," said Jeff, a patient of NHHD. Read a letter about Jeff, from Matt Horner.

Learning Issues

Liver Disorders

Lung Disorders

Lupus

Links To Lupus Organizations  www.mtio.com/mclfa/lfa7.htm

Living With Lupus  ps.superb.net/smessick/lupus.htm 

Lupus Foundation of America www.lupus.org

Lupus Living By MedaKate  www.medakate.org

Lyme Disease

THE LYME DISEASE INFORMATION LINKS PAGE! Lyme Links Page

Medical Information Sites

AllRefer.com www.allrefer.com

Colorado Healthnet  www.coloradohealthnet.org

Dr. I-Net www.drinet.com

drkoop.com  www.drkoop.com

Healthgate  www.healthgate.com

Healthanswers.com  www.healthanswers.com

Intelihealth  www.intelihealth.com

Journal of the American Medical Assoc. http://jama.ama-assn.org

MayoClinic.com www.mayoclinic.com

Medical Reference Library www.healthanswers.com

Medi-Net (background information/research service of Licensed MDs- fee charged) www.askmedi.com

Medi-Smart Nursing Resource Ctr  www.medi-smart.com

MediResource www.mediresource.com

Medscape  www.medscape.com

Merck Manual  www.merck.com/pubs/mmanual

National Institutes of Health (studies, research) www.nih.gov

National Library of Medicine www.nlm.nih.gov 

The New England Journal of Medicine  www.nejm.org/content/index.asp

NOAH: New York Online Access to Health www.noah-health.org

1Up Health www.1uphealth.com 

Rx List- Internet Drug Index  www.rxlist.com

WebMD  http://my.webmd.com

WebMedlit  http://webmedlit.silverplatter.com/index.html

Medical Information (Alternative & Nutrition)

Cancer Treatment Centers of America www.cancercenter.com 

Doctors' Research, Inc www.doctorsresearch.com

The Edelson Center www.edelsoncenter.com  

Optimal Wellness Center www.mercola.com

Townsend Letter www.tldp.com

Medical Translations

Spanish Medical Translations www.acr-translations.com 

Mental Health

American Psychological Association www.apa.org 

Bay Area Psychological Testing Assoc. www.bapta.com 

Bipolar Children  http://hometown.aol.com/DrgnKpr1/BPCAT.html

Bipolar Disorder Overview from MayoClinic.com - www.mayoclinic.com/health/bipolar-disorder/DS00356

Depression (hormonal issues) www.drmirkin.com/women/1233.html 

Depression Forums  www.DepressionForums.org

Depression-Guide.com www.Depression-Guide.com 

Depression Learning Path www.clinical-depression.co.uk/

Depression.com (information on drug and natural treatments) www.depression.com

Mental Health and Illness.com  www.mentalhealthandillness.com

Mental Health Net  www.cmhc.com/dxtx.htm

NAMI The Nation's Voice on Mental Illness www.nami.org

Psychiatry Matters.MD www.psychiatrymatters.md 

Silver Ribbon Campaign for the Brain www.silverribbon.org 

total-health-care.com www.total-health-care.com

Use of T3 Thyroid Hormone to Treat Depression- Dr. Mirkin www.drmirkin.com/morehealth/G171.htm

Message Boards, Clubs, Forums & Chats

BrainTalk Communities www.BrainTalk.org 

Cardio Files www.cardiofiles.net

Community Zero www.communityzero.com 

Delphi Forums  www.delphiforums.com

IDA's Online Support Group http://www.myida.org/myinvisibledisabilitiescommunity.htm 

IDA's Support Group Bulletin Board! Access several support groups and personal websites on this board! Click Here! 

IDA's Message Board http://members3.boardhost.com/invdisabilities/

MDJunction.com www.mdjunction.com

MSN Web Communities  http://groups.msn.com

MyHealthPals.com www.myhealthpals.com

Neuropathy Association www.neuropathy.org

Ultimate Bulletin Boards  www.nightspinner.com

Talk City  www.talkcity.com

Yahoo! Clubs http://dir.groups.yahoo.com/dir/Health___Wellness/

Migraines

Headache/Migraine Help (Info. and Links) www.cfrancine.bizland.com/page18.html 

Migraine - More Than a Headache www.botanical.com/botanical/article/

column_christina/christina_headache.htm 

National Headache Foundation www.headaches.org/ 

Multiple Chemical Sensitivities

Visit The Cleaner Indoor Air Campaign Click Here

Sponsored By The Invisible Disabilities Advocate

Multiple Sclerosis

THE MS INFORMATION LINKS PAGE! MS Links Page

Myalgic Encephalomyelitis (M.E.)

Myasthenia Gravis

Myasthenia Gravis Meeting Place www.myasthenicmeetingplace.org.uk 

The Myasthenia Gravis Foundation of America www.myasthenia.org 

Neurological Disorders

The American Academy of Neurology www.aan.com 

The American Academy of Neurology Foundation www.neurofoundation.org 

The Brain Matters www.thebrainmatters.org

Cauda Equina Syndrome www.caudaequina.org 

The Noise Center -Promotes hearing conservation and noise awareness through education, advocacy and outreach. International Noise Awareness Day educates the general public about the harmful effects of noise on hearing, health and the quality of life. www.lhh.org/noise

National Inst. NINDS  www.ninds.nih.gov

Spastic Paraplegia Foundation http://sp-foundation.org 

Stiffman Syndrome www.stiffman.org

Thoracic Outlet Syndrome www.tellmeabouttos.com 

Neuropathy

Parents with Disabilities

Diana Michelle's Homepage  http://ourworld.compuserve.com/homepages/

Trish_and_John/diana.htm

Parenting With An Illness  www.angelfire.com/sk/ruthb1

Rest Ministries Parenting With An Illness  www.restministries.org/parenting.htm

Pancreas

The Pancreatitis Place www.pancreatitisplace.org

Parkinson's Disease

Harvard Guide To Orgs  http://brain.mgh.harvard.edu:100/pd-suprt.htm

Parkinson's Alliance  www.parkinsonalliance.net

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ADD Your Personal Site Link to Our Bulletin Board! Don't forget to add a link to our site from your as well! Only personal, non-commercial sites that pertain to chronic illness. Click Here!  

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JOIN A WEBRING! IDA's Webrings

Brain Tumor - Pituitary Adenoma http://eckerd.healthcite.com/HealthReview/p6154.html

Neuroendocrine http://neurosurgery.mgh.harvard.edu/neuroendocrine/ 

Not Over Till the Fat Lady Sings www.notovertillthefatladysings.com 

Pituitary Network Association www.pituitary.org  

UCSF Pituitary Treatment Center Click Here 

International Post Polio Health www.post-polio.org

Post Polio Network www.polionet.org